Here’s a list of my top (in no particular order) resources for gynecological cancer patients. In this post I offer some reputable, reliable sources of information and give pointers for when you are browsing these websites. This list is non-exhaustive: these organizations are a great place to start.
“The Foundation for Women’s Cancer (FWC) steadily pursues its mission of supporting research, education and public awareness of gynecologic cancers. The FWC is the official foundation of the Society of Gynecologic Oncology (SGO), the premier medical specialty society for healthcare professionals trained in the comprehensive management of gynecologic cancers.”
Thoughts: One of the most important aspects of the FWC is their commitment to diversity and inclusion. FWC has pledged itself “to cultural humility and diversity of thought and engagement”, which is a crucial value to have. As illustrated in my previous blog post, Disparities in Cancer Care, organizations must dedicate themselves to ensuring equitable care. FWC has financial resources for cancer patients that include defining common financial terms, how to qualify for social security benefits for gynecological cancer, how to apply for benefits, and financial questions to ask your treatment team. Overall, the FWC is thorough, easily accessible, and committed to important principles.
“The GOG Foundation, Inc. (GOG Foundation) is a nonprofit organization with the purpose of promoting excellence in the quality and integrity of clinical and basic scientific research in the field of gynecologic malignancies, including cancers that arise from the ovaries, uterus, cervix, vagina, and vulva. Our institutions and investigators are essential contributors to advancements in treatment regimens, surgical procedures, quality of life analyses, and prevention knowledge. The results of GOG Foundation clinical trials have influenced the standard of care for numerous malignant gynecologic neoplasms.”
Thoughts: The GOG is truly “transforming the standard of care” for those affected by gynecological cancer. The GOG has funded over 350 clinical trials, partners with over 400 participating sites, and has impacted over 100,000 patients. Just by looking at the numbers alone, the impact of the GOG is undeniable. I recommend using this resource to get up to date information about the latest scientific breakthroughs and clinical research.
“Our society consists of registered nurses and associates. We are dedicated to the advancement of patient care, education, and research in gynecologic oncology and women’s health care. We provide members with opportunities to increase their knowledge, skills, and understanding of professional issues. SGNO is determined to make a difference.”
Thoughts: For over 35 years the Society of Gynecologic Nurse Oncologists has served those who have been affected by gynecological cancer by providing education, research, and funds for causes that are working for an end to gynecological cancer. The 38th Annual SGNO Symposium will be held virtually in March of 2021, and is accepting registrations. Check out their education page, it has resources for financial aid, nursing school tips, and scholarship opportunities for nursing students! Their outstanding outreach page also provides ways to get involved, such as reading up on bills that are making a difference in how cancer is currently researched.
“Our Mission is to promote excellence in the care of women at risk for or affected by gynecologic cancer through advocacy, education, research and interdisciplinary collaboration. Our Vision is to eradicate gynecologic cancers.”
Thoughts: The four pillars that the Society of Gynecologic Oncology (SGO) is founded on are education, research, advocacy, and action. The SGO is officially represented by the Foundation for Women’s Cancer (FWC), however it includes other resources from the FWC. The SGO has/is a:
- Over 2,000 members
- Society for gynecologic oncologists, medical oncologists, physician assistants, nurse practitioner, patient advocates and more
- Hub for patient care, education and advocacy
- Center where professionals learn the latest news, research and practice recommendations, keep up with continuing education, develop new skills, make valuable contacts, advance their careers and provide better care to patients
“The National Cervical Cancer Coalition (NCCC) was founded in 1996 as a grassroots nonprofit organization dedicated to serving women with, or at risk for, cervical cancer and HPV disease. In 2011, NCCC merged with American Sexual Health Association (ASHA), a nonprofit with a long history of educating and raising awareness on sexual health issues. The NCCC has thousands of members around the world, and chapters across the U.S.”
Thoughts: The National Cervical Cancer Coalition provides a great summary of their services on their website:
- Support services for NCCC local chapters whose mission is to educate their community about HPV and cervical health issues.
- Free materials that educate about HPV and cervical health, including cervical cancer.
- Tools for prevention, detection and screening awareness.
- Quilt project – Quilts that travel the country and help to place a personal face on the battle against cervical cancer.
- Extensive outreach during Cervical Health Awareness Month in January.
These services are invaluable and are given with the financial burden of cancer in mind. There are extensive free materials alongside information about financial aid and resources.
Let us know your go-to websites for accurate and helpful information about gynecological cancer in the comments!